To The New Year

My New Year evening celebration was spent hanging out in bed with a few of my greatest friends. They helped me get done up just in time for the new year, and we all danced in the kitchen watching the ball drop on one of our phones. It was a great start to 2018, and... Continue Reading →

Catching Up At Home

One of the hardest parts of being in the hospital is catching up at home. Not only in ways like organizing your room again, but doing your best to learn what has happened while you were gone. Being in the hospital is almost like being cut off from the world entirely. My friends visited me... Continue Reading →

Saturday, Dec. 30/17

Its 5am, and my feeding tube burst open. As disgusting as it is, it needs to be talked about. I woke up covered in stomach acid and a good portion of what was supposed to be my meal for the night, a couple containers of peptomen. Yesterday I was in the hospital for a hole... Continue Reading →

My job is chronic illness

  "What bi**h working as hard as me?" - Cardi B Me, Cardi B. I'm working as hard as you, though going into 2018, I haven't been able to work a job for 3 years. My first "real job" was straight out of high school. I was new to being chronically ill, sleeping 14 hours a... Continue Reading →

An Update

The way my hand looks is a metaphor for how my body works :p So today I found a tiny hole in my feeding tube. Its about the size of a pin and even though its near the end of the tube and likely can be replaced without going back to the hospital, I'm very... Continue Reading →

Run

When I was a kid, my mother would always tell me to run. Run, walk, bike, use everything I had. Our trips out of the house were always to places where we could partake in activities, we would go to the park and climb up huge hills, run around a playscape, run. Always running. At... Continue Reading →

Yesterday, I Ate

That is the first time I've been able to say that in weeks. I sipped a coffee, around 6 sips in the morning, sipped a ginger tea, maybe 10 sips, ate a few slices of cheese and ate quinoa cereal. It was heavenly. Absolutely amazing. It worked well! Every time I took a bite, more... Continue Reading →

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